Off the Dial

Uncategorized

Diabetes Forecast: People to Know

“Diabetes Forecast®, the Healthy Living Magazine of the American Diabetes Association, names Stacey Simms as one of 12 People to Know for 2017.”

002-007_com_TOC_F.indd

Me & Ben Vereen? Are you kidding? What else to say, but thank you!? (Click here to see the issue online)

Thank you to the editors and the committee who puts together the issue. Thanks to Jonathan Shuffield who interviewed me for the issue and editor Kelly Rawlings who informed me I was on the list. You can hear both of them on the podcast this week (click the handy player down below to listen right now).

But really, this is a thank you to you, my listeners. I’d like to say I started Diabetes Connections because I had a singular desire to help people. That I wanted to help newly diagnosed families realize it would be okay and help long-time T1Ds find new inspiration and motivation. Honestly? It’s because I couldn’t stop talking back to my radio.

After working in broadcasting my entire career, the brutal hours finally caught up with me. But when I left my early morning radio job, I found myself talking back to the podcasts I listened to, the radio shows I enjoyed. One day while walking my dog and yelling at Terri Gross, I knew I had to start my own show.

Just over two years later, to have this kind of validation is an incredible feeling. But it only confirms what I already know from emails, social media messages and, when I’m really lucky, in-person meetups. Listening to the voices of our community is helpful. Hearing stories of connection is vital. And knowing we’re not alone is invaluable. I’m here to tell those stories. Thanks for allowing me that privilege.

(click on the big blue play button to listen right here)


 

 

Expect the Unexpected #DBlogWeek

Hey! It’s Diabetes Blog Week again! All week amazing people in the Diabetes Online Community will be sharing their thoughts on all sorts of cool topics. Karen Graffeo organizes this event every year – I spoke to her for the podcast last week. You can listen here (Karen’s interview starts at 39:00):

dblogweek2017long


 

Today’s topic: Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random.  What are your best tips for being prepared when the unexpected happens? 

After more than ten years of type 1 diabetes, I can say that the only thing you can be ready for IS the unexpected. Especially with kids. Site comes off during a birthday party? Low-carb drink turns out to be big time sugar? Too much sand in an inset to reinsert? Yup. It happens. While I never like that feeling of “fix it later,” we’ve learned that Benny is more resilient and diabetes is less of an emergency than I ever thought it would be during those first few scary months after diagnosis.

My husband likes to say the backup plan is more important than the actual plan. That came in handy when he was a TV newscast  director and we’ve found it to be true for diabetes in action!

As just one example, a while back we took the kids snow tubing. Slade and I grew up in New York, but our children are snow-deprived. The Charlotte area gets maybe 1-2 inches a year and rarely all at once. We’re more likely to get ice or slushy yuck. Once every couple of years, we get 3-4 inches all at once and the kids go bananas.

That Saturday, we bundled everyone up and headed off to the mountains. I packed two changes of clothes and extra socks and shoes for everyone. We don’t have actual winter clothes (no ski jackets or pants) and I assumed there’d be a lot of slush and wet and general yuck. I also threw in our diabetes bag.

Benny carries his meter and a juice box wherever he goes. For the last few years, he’s used a leather pouch. It’s really a golf tee/supply bag, but it’s a great fit and Benny doesn’t feel like he’s carrying a purse!  When we take a day trip or we’ll be out for a while, I throw a bigger diabetes bag in the car. This one can hold our pump supplies, extra strips, insulin, needles, etc.   In the summer, I put the insulin vial in a Frio. Somehow, it all fits.

A day outside in the mountains means stopping on the road for a big breakfast. Our kids love the Waffle House and I’ve resigned myself to eating there (I try not to watch the grease on the grill). After something smothered & covered, Slade and Benny figured out the carbs and Benny started to bolus. They both looked up at me with that “something’s wrong” look. “The pump says there’s only one unit left,” Slade said.

What? How is that possible? Why didn’t the pump alarm go off? Oh wait….

That’s when I remembered Benny waking up at 1am, stumbling into my room muttering, “My pump’s making noise.” The reminder alarm was going off, indicating the pump only had 10 units of insulin left. I confirmed the alarm (which turns it off) and told him we’d change the cartridge in the morning.  Of course, in the morning all I remembered was that I was pretty tired for some reason.

We paid the bill and walked to the car. I had the diabetes bag, so I knew we should be all set. But while I was reassuring Benny and Lea everything would be fine, I was trying to remember if I’d double checked the bag and if I could even remember the last time I’d reloaded everything. We were at least an hour from home and, I have to admit, I was nervous. But, it was all there.  One quick cartridge change in the car, giant breakfast bolus and on our way to tubing (which reminds me, I really should put some extra pump tubing in the bag).

I love it when a backup plan comes together.

(partially reprinted from a 2013 post)

 

My 1993 Oscar Interview with Leonardo DiCaprio

I tweeted this out the night of the Golden Globes.  Got a few questions, so I thought I’d explain a bit more. Here’s the story:

 

This_Boys_Life

 

This Boy’s Life is an adaptation of a memoir by author Tobias Wolff.  The movie feaures Robert De Niro, Ellen Barkin and DiCaprio, in one of his first big-screen roles. Wolff was teaching at Syracuse University when the movie came out, which is why one of the premieres was held at a Central New York movie theater.

As I remember, DiCaprio’s dad was the person who pointed him out to me. Could have been a PR flack. The event was over and I must have looked pretty pathetic with my bulky tape recorder slung over my shoulder, running late and trying desperately to give off the aura of  a professional reporter. I was a senior at SU, working weekends at the NewsTalk station in town.

 

I first looked through my stuff for this story after Titanic came out and I realized it might be nice to have. But no luck. WSYR certainly has no record of it (right, guys? we looked, didn’t we?). This was way before digital – I may have edited it on reel-to-reel – and we didn’t keep quite as much.

I hope DiCaprio wins the Oscar this weekend. I have a fun little story here and that’ll be a cherry on top. Maybe someone will ask him if he dreamed of winning way back when. And if they’re really good, when they put the story together, they’ll use that Lovitz drop.

 

 

 

Happy New Year!

I’m not much for New Year celebrations. We had a quiet night with the kids, making s’mores in the fire pit and toasting with some quality sparkling cider:

Ringing in the New Year

Instead of big resolutions, just a few goals for 2015:

More:

Writing, water, veggies, laughing

Less:

Guilt, caffeine, junk food, staying up late for no good reason

Wishing you a happy and healthy 2015!